I remember sitting in my first support group with a bunch of parents whose children had died at Children's, and played the little game in my head. Maddy was still fresh in my mind, it was maybe only two months out. I listened to each of these parents say a bit about their children and how they died and I began a slow burn.
"Here's a picture of her junior prom. I'll never see her senior prom." At least you got to see a prom at all!
"She was really weak, but she called over everyone in the room and told us something, just a sentence each." My god, your child SPOKE?
"He turned two in the hospital. We had a party in his room." You had a BIRTHDAY PARTY?!
Within 10 minutes I thought I was the lowest of the low, the saddest of the sad. Scrape me up and put me out why don't you, y'all have no idea.
But I went back again, and again, and listened. And my mindset, after a few months, had changed considerably.
No way would I have been able to handle a year or two or more at Children's. No. Way.
I know my child felt no pain, I have no idea on earth how you could stand and watch your child feel that way.
Funny, I know your child died at 19, but I really related to what you just said.
It was in one of these meetings, in fact, where I first uttered the name of this blog. A number of conversations and a lapse of silence later and a quiet mom whose thirteen-year-old had died of cancer turned to me and said, "What was that you said again? "Awful but functioning?" Can I borrow that?"
Absolutely.
I know you've compared yourself to others before, it's human nature. It's ok. It's what you do with it and how the information changes with time that's important. I've got a post up today over on Glow in the Woods.
Monday, June 27, 2011
Sunday, June 5, 2011
Right Where I Am: Four Years, Three Four Months
(But Who's Counting.)
It's hot as Hades. I'm standing by the grill, monitoring the meat, and I look up and see that Ale has crawled into the (rusted, dirty) Radio Flyer. Mr. ABF picks up the handle and slowly starts pulling him around the yard. They quickly get to the spot in the grass, the exact spot under the chestnut kinda by the fence, where exactly four years ago right about now Bella did something cute. I honestly can't remember what it was, she was not yet three. But I do know it was a bright day like today, and I remember the ensuing conversation as if it happened five minutes ago:
Mr. ABF looked at me with a gentle, slightly sly smile and said, "How could you not want another one?" And I immediately burst into tears and practically shouted, "How could I lose another one?"
And through these ghosts, a silent dad slowly pulls a red wagon loaded with a fat baby gripping onto the sides for dear life as if he's plummeting downward through the hairy s-curves of a rickety roller-coaster.
I grin widely. I realize I have tears brimming over the corners of my eyes.
Must be my allergies.
+++
When I saw Angie was doing this project, I thought, "Great Idea!" That was a while ago. I absolutely couldn't think of what to write, how to say it.
Four-plus years out is . . . easy. No wait, it's complicated. It's . . . hard to explain. It's probably why I don't blog so much anymore truth be told -- it's just hard to find a metaphor or a story that encompasses how it is I feel about IT. I'm generally happy and go-lucky and "back to normal" (whateverthehell that is), and honestly I can go for some amount of time without even thinking about IT. (And this is while wearing a bracelet with her name on it. Duh people, I tell you.) I sat completely bewildered in front of the paper this week as I read about a three year old who drowned, and was so overwhelmed with sadness for the parents, and wondered how the younger sibling would grow up with this history, and it honestly took me a day or so to realize why this story was hitting me with the amount of detail that it was.
It's a part of me, it's in there, it's not "healed" or "done" or "closed." But nor is it open, bleeding, cutting, hurtful. It's just there. It happened.
It.
+++
I know subsequent kids aren't supposed to provide the salve that mends the wound but there is a significant way in which Ale's presence has changed my mindset.
Maddy was -- and is -- a medical mystery. No one knows what happened, only that it was on a grand scale and fatal and weird. We gave Children's our permission to send out her samples for testing and review whenever they saw fit, without having to notify us each individual time and only contacting us should they get a hit on something. I didn't see the point of the up/down endless stream of waiting by the phone, so other than the first round of information following her autopsy which included a run through the Genome project and slides sent to numerous specialists around the country and even the world, we have received no news. No news in this case is no news. (I know they still run tests; when I called to tell them I was considering getting pregnant in '09, my point person said, "Oh! We were just talking about Maddy. We're running two more tests at Baylor." Clearly, nothing came of them.)
In retrospect the radio silence consumed me. It's not that I needed a cause or something to blame, but I needed information in order to move forward. To accept that one of our family heritages contained something lethal. To let Bella know in due time. To wonder if we could now get pregnant and test for this killer DNA, or use donor gametes. Or, perhaps, it was infection/abruption -- for sure, less likely to happen again, a moment of terrible luck. While I knew deep down I would probably never know, it seemed cruel that so much of my life was tied up in the knowing.
When we decided to run with the specialists who were on the side of infection/abruption and get pregnant again, Maddy came to the fore: The medical conundrum, the fetus who showed no signs of trouble through 32 weeks. The girl who stayed in an extra week, most likely because my body was the only thing keeping her alive. Maddy's identity is largely medical because that's all she was when she was here, and for that year that I conceived and gestated her brother, she was on my lips constantly. Why I wasn't excited, why I needed that test, why I wasn't setting up a room, why I was seeing a high risk doctor. It felt good to speak of her so frequently, even though what I was talking about was liquefied white matter and fatal cardiovascular malformations. I recently read Rebecca Skloot's The Immortal Life of Henrietta Lacks and I got -- I mean, I really got -- how easy it is to anthropomorphize body parts after a person is dead. It's not that the family members are dumb or don't get that tissue doesn't feel pain, it's that that's all they know. It's why I catch myself saying, "Maddy's going back to Baylor," when really Maddy is dead and her ashes are on my bookcase and tissue from her leg is somehow flying in the mail to Texas.
But it's her, and I get to say her name, and this is how it is.
Ale was born, he came home, and suddenly . . . it was as if this entire chunk of Maddy's being ceased to matter. Do I want to know what happened? Well I suppose on some philosophical plane it might be interesting, but it no longer consumes me or glues me to the spot unable to think about tomorrow or ten years from now.
But because this was so much of how I thought about her, now I . . . think about her less. And when I do think about her, it tends to be other stuff -- how she looked, how soft her hair was, how little I was able to hold her.
I don't think that's a bad thing actually, it's a bit freeing really. And it doesn't mean I still don't get walloped occasionally by the grief stick. Some night in the past week I went in to check on Bella who was lying in perfect profile, so peacefully. Mr. ABF and I have recently commented that with the adult teeth coming in and this latest growth spurt that has her looking more tween than child, that her facial features are providing a glimpse of how she'll look in the future rather than that extension of the baby photos. And yet, in the quick moment that I took her in, just so, I was suddenly transported back to the night Maddy died, when I limped into the dark house and went immediately to Bella's room and crawled into bed with her. It remains one of my more visceral memories.
+++
At some point during the week after Maddy died, Mr. ABF told me something (now VP) Joe Biden once said. He was on Meet the Press, and the subject of his first wife's and young daughter's deaths in a car accident came up. Tim Russert (may he RIP) asked if this was a "defining moment" in his life and Biden said defiantly (and I'm paraphrasing), "No. It was the worst time of my life to be sure, but it did not define me."
And we decided, Mr. ABF and I, that we wanted to get there, to be that, to believe that. To be able to tell people and have them say, "Ah, now I understand how you made it through," rather than, "Ah, now I understand you." (When I explained this to my therapist, it was more, "Ah, now I understand how you made it through," rather than, "Ah, now I get why you're holding that martini.") I did not want to become a parody for lost children, a bereft, emotionally unsound, alcoholic, vacant excuse for a mother like that dumb-ass caricature of a (still) grieving mother in The Time Traveler's Wife. I wanted to remember Maddy to be sure, but somehow do it without breaking down, without resorting to morbidity, without disturbing those around me. I didn't want to deny, but I wanted to memorialize.
And yet I didn't want it to define me. I wanted it to be a bad moment, but not shape my existence.
I had no fucking clue how.
I still don't. But I'm a lot closer to that idea than I ever in a million years thought I would be. I tell people now who don't know but know me a bit and they're surprised; they ask great questions, I don't fall apart, it's filed away in the "life is sometimes really fucking shitty" drawer. And we continue our conversation about the book of the month, or our kid's hockey practice, or why on earth spring seemed to last two minutes this year. To them I'm a mother (now I suppose of three), a historian, a reader, a sports fan, an old-house nut, a gardener, a baker, a cook, a gal who likes a good beer, who needs a new vet, a runner, a wife, a politically cynical harpy who loves a good sale.
It happened. And I'm still functioning.
It's hot as Hades. I'm standing by the grill, monitoring the meat, and I look up and see that Ale has crawled into the (rusted, dirty) Radio Flyer. Mr. ABF picks up the handle and slowly starts pulling him around the yard. They quickly get to the spot in the grass, the exact spot under the chestnut kinda by the fence, where exactly four years ago right about now Bella did something cute. I honestly can't remember what it was, she was not yet three. But I do know it was a bright day like today, and I remember the ensuing conversation as if it happened five minutes ago:
Mr. ABF looked at me with a gentle, slightly sly smile and said, "How could you not want another one?" And I immediately burst into tears and practically shouted, "How could I lose another one?"
And through these ghosts, a silent dad slowly pulls a red wagon loaded with a fat baby gripping onto the sides for dear life as if he's plummeting downward through the hairy s-curves of a rickety roller-coaster.
I grin widely. I realize I have tears brimming over the corners of my eyes.
Must be my allergies.
+++
When I saw Angie was doing this project, I thought, "Great Idea!" That was a while ago. I absolutely couldn't think of what to write, how to say it.
Four-plus years out is . . . easy. No wait, it's complicated. It's . . . hard to explain. It's probably why I don't blog so much anymore truth be told -- it's just hard to find a metaphor or a story that encompasses how it is I feel about IT. I'm generally happy and go-lucky and "back to normal" (whateverthehell that is), and honestly I can go for some amount of time without even thinking about IT. (And this is while wearing a bracelet with her name on it. Duh people, I tell you.) I sat completely bewildered in front of the paper this week as I read about a three year old who drowned, and was so overwhelmed with sadness for the parents, and wondered how the younger sibling would grow up with this history, and it honestly took me a day or so to realize why this story was hitting me with the amount of detail that it was.
It's a part of me, it's in there, it's not "healed" or "done" or "closed." But nor is it open, bleeding, cutting, hurtful. It's just there. It happened.
It.
+++
I know subsequent kids aren't supposed to provide the salve that mends the wound but there is a significant way in which Ale's presence has changed my mindset.
Maddy was -- and is -- a medical mystery. No one knows what happened, only that it was on a grand scale and fatal and weird. We gave Children's our permission to send out her samples for testing and review whenever they saw fit, without having to notify us each individual time and only contacting us should they get a hit on something. I didn't see the point of the up/down endless stream of waiting by the phone, so other than the first round of information following her autopsy which included a run through the Genome project and slides sent to numerous specialists around the country and even the world, we have received no news. No news in this case is no news. (I know they still run tests; when I called to tell them I was considering getting pregnant in '09, my point person said, "Oh! We were just talking about Maddy. We're running two more tests at Baylor." Clearly, nothing came of them.)
In retrospect the radio silence consumed me. It's not that I needed a cause or something to blame, but I needed information in order to move forward. To accept that one of our family heritages contained something lethal. To let Bella know in due time. To wonder if we could now get pregnant and test for this killer DNA, or use donor gametes. Or, perhaps, it was infection/abruption -- for sure, less likely to happen again, a moment of terrible luck. While I knew deep down I would probably never know, it seemed cruel that so much of my life was tied up in the knowing.
When we decided to run with the specialists who were on the side of infection/abruption and get pregnant again, Maddy came to the fore: The medical conundrum, the fetus who showed no signs of trouble through 32 weeks. The girl who stayed in an extra week, most likely because my body was the only thing keeping her alive. Maddy's identity is largely medical because that's all she was when she was here, and for that year that I conceived and gestated her brother, she was on my lips constantly. Why I wasn't excited, why I needed that test, why I wasn't setting up a room, why I was seeing a high risk doctor. It felt good to speak of her so frequently, even though what I was talking about was liquefied white matter and fatal cardiovascular malformations. I recently read Rebecca Skloot's The Immortal Life of Henrietta Lacks and I got -- I mean, I really got -- how easy it is to anthropomorphize body parts after a person is dead. It's not that the family members are dumb or don't get that tissue doesn't feel pain, it's that that's all they know. It's why I catch myself saying, "Maddy's going back to Baylor," when really Maddy is dead and her ashes are on my bookcase and tissue from her leg is somehow flying in the mail to Texas.
But it's her, and I get to say her name, and this is how it is.
Ale was born, he came home, and suddenly . . . it was as if this entire chunk of Maddy's being ceased to matter. Do I want to know what happened? Well I suppose on some philosophical plane it might be interesting, but it no longer consumes me or glues me to the spot unable to think about tomorrow or ten years from now.
But because this was so much of how I thought about her, now I . . . think about her less. And when I do think about her, it tends to be other stuff -- how she looked, how soft her hair was, how little I was able to hold her.
I don't think that's a bad thing actually, it's a bit freeing really. And it doesn't mean I still don't get walloped occasionally by the grief stick. Some night in the past week I went in to check on Bella who was lying in perfect profile, so peacefully. Mr. ABF and I have recently commented that with the adult teeth coming in and this latest growth spurt that has her looking more tween than child, that her facial features are providing a glimpse of how she'll look in the future rather than that extension of the baby photos. And yet, in the quick moment that I took her in, just so, I was suddenly transported back to the night Maddy died, when I limped into the dark house and went immediately to Bella's room and crawled into bed with her. It remains one of my more visceral memories.
+++
At some point during the week after Maddy died, Mr. ABF told me something (now VP) Joe Biden once said. He was on Meet the Press, and the subject of his first wife's and young daughter's deaths in a car accident came up. Tim Russert (may he RIP) asked if this was a "defining moment" in his life and Biden said defiantly (and I'm paraphrasing), "No. It was the worst time of my life to be sure, but it did not define me."
And we decided, Mr. ABF and I, that we wanted to get there, to be that, to believe that. To be able to tell people and have them say, "Ah, now I understand how you made it through," rather than, "Ah, now I understand you." (When I explained this to my therapist, it was more, "Ah, now I understand how you made it through," rather than, "Ah, now I get why you're holding that martini.") I did not want to become a parody for lost children, a bereft, emotionally unsound, alcoholic, vacant excuse for a mother like that dumb-ass caricature of a (still) grieving mother in The Time Traveler's Wife. I wanted to remember Maddy to be sure, but somehow do it without breaking down, without resorting to morbidity, without disturbing those around me. I didn't want to deny, but I wanted to memorialize.
And yet I didn't want it to define me. I wanted it to be a bad moment, but not shape my existence.
I had no fucking clue how.
I still don't. But I'm a lot closer to that idea than I ever in a million years thought I would be. I tell people now who don't know but know me a bit and they're surprised; they ask great questions, I don't fall apart, it's filed away in the "life is sometimes really fucking shitty" drawer. And we continue our conversation about the book of the month, or our kid's hockey practice, or why on earth spring seemed to last two minutes this year. To them I'm a mother (now I suppose of three), a historian, a reader, a sports fan, an old-house nut, a gardener, a baker, a cook, a gal who likes a good beer, who needs a new vet, a runner, a wife, a politically cynical harpy who loves a good sale.
It happened. And I'm still functioning.
Tuesday, May 24, 2011
A Pessimist is Never Disappointed
Well, um, maybe sometimes.
I'm writing about optimism/pessimism, positive/negative thinking, and finding that silver lining in the shit storm. Today, over on Glow in the Woods.
I'm writing about optimism/pessimism, positive/negative thinking, and finding that silver lining in the shit storm. Today, over on Glow in the Woods.
Tuesday, May 3, 2011
One
If there's one thing that reading around in this corner of the net taught me, it's that having a subsequent child after your loss doesn't mend your broken heart and make the sunhine come out. Since for the longest time I thought anyone who wanted another baby after a horrific loss was a bit wackadoo, it was kinda nice to see that I wasn't missing out on some big wonder drug. I wasn't jealous of the babies really, but I was a bit envious of everyone's decision making power. That drive everyone seemed to have -- must have another baby! -- was totally lacking in me. Figured it was some evolutionary maternal instinct thing that got dropped along the way with the Easter Bunny (we don't do that. I refuse.) and my penchance for swearing during televised sporting events in front of impressionable ears. I would make a poor wild animal mum having to teach my three week old to hunt and defend ("I'll get it later. Look! Shiny thing! Muthafuckin' shiny thing!").
But, well, eventually I did make that decision, and here I am a whole year later.
It's been . . . odd. Truly joyful, but odd.
Having spent the entirety of my pregnancy with Muffin Man not bonding (why bother?), I've spent the entirety of the last twelve months doing so. It's a long ramp up. It's a good ramp up, don't get me wrong, and I've never felt angst-y or depressed or even anxious, more a sense of sheer amazement that he's here. That it worked. And that this isn't some bizarro nightmare like the last time, where I'll wake up and realize it was a dream. But it's not. I put my feet on the floor in the morning -- usually, way, way too early in the morning -- and am hit with the sudden realization that I have a son. Two daughters, and a son.
So I can't really say things like "well it feels like he's been here forever!" because I think I'm still getting used to the idea. I like it. So far.
Bella is also still getting used to the idea. We didn't do much in the way of preparation because we honestly didn't know what to prepare her for: do we buy her a nice doll to dress up and burp, or a box of kleenex and another childhood tome on death? So she's ramping up too, and it too has been a slow haul. She's been forthright with her displeasure at the lack of immediate attention ("It's always in a minute, or not now, or I'm busy") and I think purposefully doesn't whisper when we ask her to. You can almost smell the slow burn when a stranger stops to chirp how cute the baby is. She's cute, too. No one seems to notice her anymore, poor invisible thing in the corner. Having said that, she knows full well that he doesn't smile at just anyone, and he reserves an outright full-blown squinty-eyed cheshire grin when she enters the kitchen first thing in the morning. (Not surprisingly, "Bella!" came very shortly after "dog" and "mom.") She pushes him around in his car, and picked out -- without assistance -- two really solid birthday gifts for him. The night she was chatting with us in his room before bathtime and he spider crawled his diapered self over to her with "Go Dog, Go!" in an outstretched hand, smiling and frantically jabbering "Da! Da!", about reduced me to a puddle.
I've also never been one to muse on "Well if x hadn't have happened, than y wouldn't have either." I'm not big into math like that. Not to mention, with the gaps between my problems, these chances of fate aren't really. There was a nineteen month spread between my miscarriage and just conceiving Bella, so I never really stopped to think about one working out and the other not happening. As far as I was concerned, one was an unfortunate lost opportunity, and the other a stroke of luck. And here with three plus years between Maddy and her brother -- not to mention the relative ridiculous ease with which he was conceived compared to his sisters -- it's not hard to think about an alternate universe where she's here, and he's here too. Or, conversely, she's not, and neither is he. Because so much time had elapsed after Maddy that we had gotten very used to our family of three, and the breeziness of a four/five year old (so easy to travel with! And find a sitter for!) and so it was a real honest-to-god fresh decision about whether to have another child or not.
In sum, he's not my replacement toaster. Not that any of your children are replacement appliances, but I'm now grateful for my own crummy circumstances. The silver lining in waiting around for some medical bombshell that never appeared was that time flowed under the bridge and allowed me to get to a new place. I was already moving forward again when the idea of him came into being. I may be an old fart, but I was ready. Really ready.
As for Ale-One: He's turned into quite the eater. Apparently dissing the pears wasn't so much dissing the pears (which he now loves on an adult portion of oatmeal with a bit of yogurt), but just saying no to mushy baby food. And bibs, and little cups, and high chairs, and baby utensils. Which for a while left me wondering what on earth to feed him, and then at a holiday party after he sailed through the cocktail-flauta, pumpkin bread, and crudite with dip food groups within a 20 minute span, I decided to just up and feed him our food. And it worked out fine. We started with fish tacos on the floor sans utensils or pretenses, and went from there. He so loves his father's Sicilian chicken with orzo (his birthday dinner) that I'm thinking when we potty train I could probably make that the reward instead of m&ms.
He's quiet and observational and laughs on a dime . . . unless he's pissed. And then he's LOUD. I mean, scary hold him away from your head loud. His first comprehensible babbles were "dog" and "cat" and they've progressed so now there's a hilarious "Kirby!" yelled from his room (think "kuhbeeeeee") when the cat isn't in his assigned chair in the corner. Just recently we've even added what sounds like an occasional "good" in front of "dog." A few more months and he'll have "Asshole!" down, I'm sure.
Today he's getting a big ol' slice of Applesauce cake, because wouldn't you know -- the kid who will eat Soba Noodles with Salmon and Beef Tortellini in Brodo spits out Banana. Hates it. Huh. Funny, I will eat pretty much anything and I don't care for banana much, either.
He's definitely mine. He's definitely here, at least for the moment. Does he bring me joy? You betcha. Sometimes it's tough to discern joy from tangible relief -- the exhale and smile are similar -- but I think it's there. I've been told by a few neighbors, "You've never looked this good!" and I don't want him to be known as "he who turned your mother around." Because 1) Bella? Hello? and 2) like he needs that set of luggage to drag around. He's not the reason for the joy although it must look that way from the outside -- I think after four years I had this coming, anyway. I'm just glad he's the willing producer and recipient. I'm glad this isn't all on him, and he's a victim of good timing. In the end, I guess I knew that all coming in. And it's all ok.
Happy Birthday, little guy. We're all so happy -- phew! -- that you're here.
But, well, eventually I did make that decision, and here I am a whole year later.
It's been . . . odd. Truly joyful, but odd.
Having spent the entirety of my pregnancy with Muffin Man not bonding (why bother?), I've spent the entirety of the last twelve months doing so. It's a long ramp up. It's a good ramp up, don't get me wrong, and I've never felt angst-y or depressed or even anxious, more a sense of sheer amazement that he's here. That it worked. And that this isn't some bizarro nightmare like the last time, where I'll wake up and realize it was a dream. But it's not. I put my feet on the floor in the morning -- usually, way, way too early in the morning -- and am hit with the sudden realization that I have a son. Two daughters, and a son.
So I can't really say things like "well it feels like he's been here forever!" because I think I'm still getting used to the idea. I like it. So far.
Bella is also still getting used to the idea. We didn't do much in the way of preparation because we honestly didn't know what to prepare her for: do we buy her a nice doll to dress up and burp, or a box of kleenex and another childhood tome on death? So she's ramping up too, and it too has been a slow haul. She's been forthright with her displeasure at the lack of immediate attention ("It's always in a minute, or not now, or I'm busy") and I think purposefully doesn't whisper when we ask her to. You can almost smell the slow burn when a stranger stops to chirp how cute the baby is. She's cute, too. No one seems to notice her anymore, poor invisible thing in the corner. Having said that, she knows full well that he doesn't smile at just anyone, and he reserves an outright full-blown squinty-eyed cheshire grin when she enters the kitchen first thing in the morning. (Not surprisingly, "Bella!" came very shortly after "dog" and "mom.") She pushes him around in his car, and picked out -- without assistance -- two really solid birthday gifts for him. The night she was chatting with us in his room before bathtime and he spider crawled his diapered self over to her with "Go Dog, Go!" in an outstretched hand, smiling and frantically jabbering "Da! Da!", about reduced me to a puddle.
I've also never been one to muse on "Well if x hadn't have happened, than y wouldn't have either." I'm not big into math like that. Not to mention, with the gaps between my problems, these chances of fate aren't really. There was a nineteen month spread between my miscarriage and just conceiving Bella, so I never really stopped to think about one working out and the other not happening. As far as I was concerned, one was an unfortunate lost opportunity, and the other a stroke of luck. And here with three plus years between Maddy and her brother -- not to mention the relative ridiculous ease with which he was conceived compared to his sisters -- it's not hard to think about an alternate universe where she's here, and he's here too. Or, conversely, she's not, and neither is he. Because so much time had elapsed after Maddy that we had gotten very used to our family of three, and the breeziness of a four/five year old (so easy to travel with! And find a sitter for!) and so it was a real honest-to-god fresh decision about whether to have another child or not.
In sum, he's not my replacement toaster. Not that any of your children are replacement appliances, but I'm now grateful for my own crummy circumstances. The silver lining in waiting around for some medical bombshell that never appeared was that time flowed under the bridge and allowed me to get to a new place. I was already moving forward again when the idea of him came into being. I may be an old fart, but I was ready. Really ready.
As for Ale-One: He's turned into quite the eater. Apparently dissing the pears wasn't so much dissing the pears (which he now loves on an adult portion of oatmeal with a bit of yogurt), but just saying no to mushy baby food. And bibs, and little cups, and high chairs, and baby utensils. Which for a while left me wondering what on earth to feed him, and then at a holiday party after he sailed through the cocktail-flauta, pumpkin bread, and crudite with dip food groups within a 20 minute span, I decided to just up and feed him our food. And it worked out fine. We started with fish tacos on the floor sans utensils or pretenses, and went from there. He so loves his father's Sicilian chicken with orzo (his birthday dinner) that I'm thinking when we potty train I could probably make that the reward instead of m&ms.
He's quiet and observational and laughs on a dime . . . unless he's pissed. And then he's LOUD. I mean, scary hold him away from your head loud. His first comprehensible babbles were "dog" and "cat" and they've progressed so now there's a hilarious "Kirby!" yelled from his room (think "kuhbeeeeee") when the cat isn't in his assigned chair in the corner. Just recently we've even added what sounds like an occasional "good" in front of "dog." A few more months and he'll have "Asshole!" down, I'm sure.
Today he's getting a big ol' slice of Applesauce cake, because wouldn't you know -- the kid who will eat Soba Noodles with Salmon and Beef Tortellini in Brodo spits out Banana. Hates it. Huh. Funny, I will eat pretty much anything and I don't care for banana much, either.
He's definitely mine. He's definitely here, at least for the moment. Does he bring me joy? You betcha. Sometimes it's tough to discern joy from tangible relief -- the exhale and smile are similar -- but I think it's there. I've been told by a few neighbors, "You've never looked this good!" and I don't want him to be known as "he who turned your mother around." Because 1) Bella? Hello? and 2) like he needs that set of luggage to drag around. He's not the reason for the joy although it must look that way from the outside -- I think after four years I had this coming, anyway. I'm just glad he's the willing producer and recipient. I'm glad this isn't all on him, and he's a victim of good timing. In the end, I guess I knew that all coming in. And it's all ok.
Happy Birthday, little guy. We're all so happy -- phew! -- that you're here.
Thursday, April 7, 2011
Trade Winds
I keep thinking I'm going to sit down and write. In fact, I *did* sit for a few brief moments somewhere in the vicinity of the 18th/19th of last month and started my annual birthday handwringing post, but my birthday (42, if you're keeping score) was a maelstrom of packing for a week's vacation beginning the next day. For the record, I got a potholder, two paperbacks, and a sandwich. No, I mean a sandwich. Clearly a banner year, 42.
Then I thought eh, I'll just type a quick birthday/post vacation summary when I get home. And then Ale-puke got a stomach bug on the second to last day of vacation, which found yours truly violently ill the last night of vacation. And let me tell you, there's nothing worse than a Norowhathaveyou bug making it's way through a family --- than if that family is sharing a v. small room. Wait, it could be worse: Small family-shared room plus the fact that departure was on the hottest day of the week in a tiny tin shed that passes for a Caribbean airport full of oversold planeloads of humanity. I decided not to eat to spare myself getting ill on the plane, which left me feeling close to passing out, holding a limpid baby who had ingested nothing other than pedialyte for the past 36 hours in an unairconditioned terminal. We made a nice looking family. Especially to the security guard who espied us half on the floor and herded us out of line and right to the front. Mr. ABF got a mild version, Bella kindly waited until Tuesday at 4 a.m., safely in our own home.
I'm sure with some distance I'll fondly remember the much-needed warmth, and the bright tropical colors, and the clear blue ocean.
The trip was actually timed extremely well; arriving guests would spot one of the kid's Philly's Jerseys or Mr. ABF's Flyer's cap and notify us -- usually while we were in the middle of re-applying sunscreen and deciding whose turn it was to run and get a bunch of frozen fruity drinks -- that they just left that morning and there were snow flurries. Our depressed bones warmed. There was snorkeling, there was someone else preparing food and cleaning it up, there was an extremely friendly stray cat, there were kid's activities, and there was even a space of nothing to do while the baby napped. Imagine! Reading or (gasp) napping while the baby naps. Children were good on the plane (Bella was nothing short of a dream traveller even during airport hell -- she was duly rewarded), Ale even kept his nap schedule and slept decently at night. Until the plague hit.
I may never leave the house again. I may even check into grocery delivery.
+++
The place where we stayed had photographers who would run around and follow you and your kids and then invite you to go purchase their pictures for some absurd price. But they also scheduled times to take pictures of families. And after being asked if we wanted this, and glimpsing a family decked out to the nines trudging off to the beach one evening with a photographer in tow, the idea took hold and I couldn't shake it. I'm not sure if it was a need to celebrate my family, or more of a need to cling to it -- to grab hold of this moment so in the future I can look back and remind myself that I wasn't crazy, we were all there, we were all (modestly, mostly) happy. In the middle of this photo shoot I realized we hadn't taken "family" photos since Bella was 9 months old. We skipped a few years of photographing altogether, and only recently slowly have gotten back in the habit of trying to keep the camera battery charged. There are only pictures of kids though -- it's as if the parents disappeared, like in a fantasy novel where the six year old must now charter the waters, un-gently tending to her infant brother, through a sea of picnics and zoo trips and Christmas mornings, sometimes with an anonymous adult hand or arm. We are slowly awakening to being parents again, not just older responsible humans along for the ride. We lost our jobs, and were rehired, and we're older now, and the cobwebs are thick and the job has changed a bit.
It's a bit funky, this family. But there we are.
+++
Did I mention I'm 42? My whole life, since my hair changed from blonde to dishwater brown around age four, the hair around my face goes blonde, especially in the summer. I've been charged with having faux highlights (one hairdresser was rather adamant that I give up my secret, not believing there was none to be had), and they're a saving grace on an otherwise tiresome flat and uninspiring head of hair. I noticed on vacation they no longer go blonde, they go bright silver. There are few but brilliant sharp silver ribbons running through the brown framing my face. There will be a decision this year whether to vainly reach for a bottle and have things as they once were, or let it go. People with infants should'nt have gray hairs, I've decided. A mindset that is obviously pointing me in a certain direction to try grimly to hang onto a former life. Good luck with that.
+++
The baby, he's eleven months. Bella's first year was an eternity it seemed, a endlessly stretching horizon of sleeplessness and unrequited love. (I really don't like that about babies. At least puppies lick you and wag their tails. I mean sure, he smiles at me and says mama, but he smiles when he poops, and smiles when Bella makes fart noises, and smiles when he sees his sister has jammed her barbie headfirst into his car garage.) This year has tracked very similarly to Bella's when it comes to sleep -- there was none, and there was a lot, and then it slowly whittled away and devolved until it was hell, and then boom, there was sleep again and now we're fine (except that he naps too where she didn't, which is such a bonus).
So it would seem that I would feel similarly at the end of this year (e.g., awakening from a coma) . . . except I don't. I feel pretty great. I feel, well, um, how to say this, happy. More or less content. Sure I could be getting more sleep (for some reason we were up at 4:00, then 5:00, and finally settled on 6:00 this morning), my midsection could be tightening up a bit more, I could have more hours for yard work, my floors could be mopped. But I'm ok. I feel rather lucky, which is a strange thing to feel anymore.
Anyway.
I hope you are well.
Then I thought eh, I'll just type a quick birthday/post vacation summary when I get home. And then Ale-puke got a stomach bug on the second to last day of vacation, which found yours truly violently ill the last night of vacation. And let me tell you, there's nothing worse than a Norowhathaveyou bug making it's way through a family --- than if that family is sharing a v. small room. Wait, it could be worse: Small family-shared room plus the fact that departure was on the hottest day of the week in a tiny tin shed that passes for a Caribbean airport full of oversold planeloads of humanity. I decided not to eat to spare myself getting ill on the plane, which left me feeling close to passing out, holding a limpid baby who had ingested nothing other than pedialyte for the past 36 hours in an unairconditioned terminal. We made a nice looking family. Especially to the security guard who espied us half on the floor and herded us out of line and right to the front. Mr. ABF got a mild version, Bella kindly waited until Tuesday at 4 a.m., safely in our own home.
I'm sure with some distance I'll fondly remember the much-needed warmth, and the bright tropical colors, and the clear blue ocean.
The trip was actually timed extremely well; arriving guests would spot one of the kid's Philly's Jerseys or Mr. ABF's Flyer's cap and notify us -- usually while we were in the middle of re-applying sunscreen and deciding whose turn it was to run and get a bunch of frozen fruity drinks -- that they just left that morning and there were snow flurries. Our depressed bones warmed. There was snorkeling, there was someone else preparing food and cleaning it up, there was an extremely friendly stray cat, there were kid's activities, and there was even a space of nothing to do while the baby napped. Imagine! Reading or (gasp) napping while the baby naps. Children were good on the plane (Bella was nothing short of a dream traveller even during airport hell -- she was duly rewarded), Ale even kept his nap schedule and slept decently at night. Until the plague hit.
I may never leave the house again. I may even check into grocery delivery.
+++
The place where we stayed had photographers who would run around and follow you and your kids and then invite you to go purchase their pictures for some absurd price. But they also scheduled times to take pictures of families. And after being asked if we wanted this, and glimpsing a family decked out to the nines trudging off to the beach one evening with a photographer in tow, the idea took hold and I couldn't shake it. I'm not sure if it was a need to celebrate my family, or more of a need to cling to it -- to grab hold of this moment so in the future I can look back and remind myself that I wasn't crazy, we were all there, we were all (modestly, mostly) happy. In the middle of this photo shoot I realized we hadn't taken "family" photos since Bella was 9 months old. We skipped a few years of photographing altogether, and only recently slowly have gotten back in the habit of trying to keep the camera battery charged. There are only pictures of kids though -- it's as if the parents disappeared, like in a fantasy novel where the six year old must now charter the waters, un-gently tending to her infant brother, through a sea of picnics and zoo trips and Christmas mornings, sometimes with an anonymous adult hand or arm. We are slowly awakening to being parents again, not just older responsible humans along for the ride. We lost our jobs, and were rehired, and we're older now, and the cobwebs are thick and the job has changed a bit.
It's a bit funky, this family. But there we are.
+++
Did I mention I'm 42? My whole life, since my hair changed from blonde to dishwater brown around age four, the hair around my face goes blonde, especially in the summer. I've been charged with having faux highlights (one hairdresser was rather adamant that I give up my secret, not believing there was none to be had), and they're a saving grace on an otherwise tiresome flat and uninspiring head of hair. I noticed on vacation they no longer go blonde, they go bright silver. There are few but brilliant sharp silver ribbons running through the brown framing my face. There will be a decision this year whether to vainly reach for a bottle and have things as they once were, or let it go. People with infants should'nt have gray hairs, I've decided. A mindset that is obviously pointing me in a certain direction to try grimly to hang onto a former life. Good luck with that.
+++
The baby, he's eleven months. Bella's first year was an eternity it seemed, a endlessly stretching horizon of sleeplessness and unrequited love. (I really don't like that about babies. At least puppies lick you and wag their tails. I mean sure, he smiles at me and says mama, but he smiles when he poops, and smiles when Bella makes fart noises, and smiles when he sees his sister has jammed her barbie headfirst into his car garage.) This year has tracked very similarly to Bella's when it comes to sleep -- there was none, and there was a lot, and then it slowly whittled away and devolved until it was hell, and then boom, there was sleep again and now we're fine (except that he naps too where she didn't, which is such a bonus).
So it would seem that I would feel similarly at the end of this year (e.g., awakening from a coma) . . . except I don't. I feel pretty great. I feel, well, um, how to say this, happy. More or less content. Sure I could be getting more sleep (for some reason we were up at 4:00, then 5:00, and finally settled on 6:00 this morning), my midsection could be tightening up a bit more, I could have more hours for yard work, my floors could be mopped. But I'm ok. I feel rather lucky, which is a strange thing to feel anymore.
Anyway.
I hope you are well.
Thursday, March 17, 2011
Pat on the Back
I caught snippets of a discussion the other day on self-pity and self-compassion. 'Twas interesting, and made me think not only of Japan, but all of us. Me. This community. And that maybe this woman had a point about self-compassion and not feeling quite so alone. I have a post up on Glow in the Woods.
Thursday, March 10, 2011
Makena: Or, How to Make-na Some Bucks from Women Who Have Already Paid the Highest Price
So I'm putting today's soggy, largely unread newspaper (Good Lord, this suspended priest issue is upsetting) in the recycling bin this evening when a headline catches my eye:
"Cost of Drug Preventing Preterm Labor to Soar."
Oh, like I needed that kick in the crotch.
Here's the situation as I understand it having surfed around and found a few more articles:
Apparently there's a synthetic-progesterone-based injection that doctors have prescribed for years in order to prevent pre-term labor. It's generally given from about week 16 through the end of the pregnancy, and has shown to be quite effective. Generally, a pharmacy can mix up this concoction and charges somewhere in the neighborhood of $15-20 per dose. In sum, people know how to make it, it works, it's very cheap. Yay babies not being born early!
Then Big Pharm company KV Pharmaceutical comes along and requests FDA approval of this drug they're calling Makena. It's the same fucking thing as before, but now probably in fancy packaging. (I'm guessing a lovely gender neutral purple.) Zero dollars were spent doing R&D because everybody and their mother already knew about it and how to make it, but I'm sure some bucks went into marketing. The FDA approved it, which means KV has a lock on it for the next number of years, they're going to make pharmacies cease and desist making it, and they're going to charge . . . .
$1,500 per dose. Which comes out to about $30,000 per pregnancy.
Yeah.
Obviously the doctors and insurance companies are beyond alarmed. One doctor in the article is outraged, another "breathless." Everyone is worried sick that women who lack insurance, or whose insurance refuses to pay it (pre-existing condition anyone? Because obviously you need to experience a pre-labor catastrophe in order to conclude that you have a problem, and may need this drug), or who get government-assistance (the government is a bit cash strapped of late, in case you've been preoccupied) will not get it. (The company claims it will offer assistance. I'm not sure where that leaves people who are independently insured but whose insurance companies don't cover pregnancy. Like mine.) Insurance companies are dry-heaving because of course they want to cover this, but now they'll have to (big surprise) raise rates across the board in order to cover this. One Aetna rep in one of the articles I perused claimed that she knows of 1,000 people or so who get this drug per year in her system.
The drug company? They defend the outrageous price hike with the following statement:
Let me get this straight. You're going to charge mothers $30,000 to offset a potential $51,000, thus saving the health care system $21,000 per child.
Aren't you so fucking sweet. Because until you came along, the cost of the drug per pregnancy was $400, making the savings $50,700.
And those are the "lucky" ones (not) (not remotely) whose children are born outrageously early who live. Who suffer some really awful consequences and life-long disabilities.
I guess the ones who die, since they don't cost $51,000 the first year, aren't costing the system anything. Which means KV is making $30,000 in pure profit, essentially putting a price on a live child (because we? were all wondering).
To employ new math: It's not about the OFFSET you asshole, it's about taking a child to term. It's about HAVING A CHILD WHO LIVES. These moms don't deserve some fancy-ass package that your marketing team spent precious power point time dreaming up, they deserve a chance at a full-term pregnancy. THEY DESERVE A BABY WHO LIVES. Regardless of their income, or their insurance situation.
And that's not factoring in what I anticipate to be a rise in premature labor in lower income groups and those with government or private insurance because they won't be able to afford the same-old-drug in your fancy ass box. You aren't offsetting, you're going to cost. You're going to cost a lot. According to the March of Dimes,
I'm honestly apoplectic and don't know where to dump this other than here. You can read more about this decision to screw pregnant women over on NPR and numerous blogs, such as Bizmology and Contentenique.
Reaching KV is more difficult; if you feel this is an "investor Relations" issue, you can email them at investorrelations@kvpharmaceutical.com. I'd be more inclined to see this as "an adverse event or side effect" in which case you can email them at drugsafety@kvph.com.
Show some outrage, if you have a few moments. Women who have gone into labor prematurely and lost children -- or are living with the consequences of a child born way, way too early -- have already paid enough, a few lifetimes over. They don't owe big pharm jack squat.
"Cost of Drug Preventing Preterm Labor to Soar."
Oh, like I needed that kick in the crotch.
Here's the situation as I understand it having surfed around and found a few more articles:
Apparently there's a synthetic-progesterone-based injection that doctors have prescribed for years in order to prevent pre-term labor. It's generally given from about week 16 through the end of the pregnancy, and has shown to be quite effective. Generally, a pharmacy can mix up this concoction and charges somewhere in the neighborhood of $15-20 per dose. In sum, people know how to make it, it works, it's very cheap. Yay babies not being born early!
Then Big Pharm company KV Pharmaceutical comes along and requests FDA approval of this drug they're calling Makena. It's the same fucking thing as before, but now probably in fancy packaging. (I'm guessing a lovely gender neutral purple.) Zero dollars were spent doing R&D because everybody and their mother already knew about it and how to make it, but I'm sure some bucks went into marketing. The FDA approved it, which means KV has a lock on it for the next number of years, they're going to make pharmacies cease and desist making it, and they're going to charge . . . .
$1,500 per dose. Which comes out to about $30,000 per pregnancy.
Yeah.
Obviously the doctors and insurance companies are beyond alarmed. One doctor in the article is outraged, another "breathless." Everyone is worried sick that women who lack insurance, or whose insurance refuses to pay it (pre-existing condition anyone? Because obviously you need to experience a pre-labor catastrophe in order to conclude that you have a problem, and may need this drug), or who get government-assistance (the government is a bit cash strapped of late, in case you've been preoccupied) will not get it. (The company claims it will offer assistance. I'm not sure where that leaves people who are independently insured but whose insurance companies don't cover pregnancy. Like mine.) Insurance companies are dry-heaving because of course they want to cover this, but now they'll have to (big surprise) raise rates across the board in order to cover this. One Aetna rep in one of the articles I perused claimed that she knows of 1,000 people or so who get this drug per year in her system.
The drug company? They defend the outrageous price hike with the following statement:
KV Pharmaceutical chief executive Gregory J. Divis Jr. said the cost was justified to avoid the mental and physical disabilities that can come with very premature births. The cost of care for a preemie is estimated at $51,000 in the first year alone.
"Makena can help offset some of those costs," Divis said. "These moms deserve the opportunity to have the benefits of an FDA-approved Makena."
Let me get this straight. You're going to charge mothers $30,000 to offset a potential $51,000, thus saving the health care system $21,000 per child.
Aren't you so fucking sweet. Because until you came along, the cost of the drug per pregnancy was $400, making the savings $50,700.
And those are the "lucky" ones (not) (not remotely) whose children are born outrageously early who live. Who suffer some really awful consequences and life-long disabilities.
I guess the ones who die, since they don't cost $51,000 the first year, aren't costing the system anything. Which means KV is making $30,000 in pure profit, essentially putting a price on a live child (because we? were all wondering).
To employ new math: It's not about the OFFSET you asshole, it's about taking a child to term. It's about HAVING A CHILD WHO LIVES. These moms don't deserve some fancy-ass package that your marketing team spent precious power point time dreaming up, they deserve a chance at a full-term pregnancy. THEY DESERVE A BABY WHO LIVES. Regardless of their income, or their insurance situation.
And that's not factoring in what I anticipate to be a rise in premature labor in lower income groups and those with government or private insurance because they won't be able to afford the same-old-drug in your fancy ass box. You aren't offsetting, you're going to cost. You're going to cost a lot. According to the March of Dimes,
Preterm birth is the leading cause of death in the first month of life in the United States. The preterm birth rate has increased about 20 percent since 1990, and costs the nation more than $26 billion a year, according to the Institute of Medicine report issued in July 2006.
I'm honestly apoplectic and don't know where to dump this other than here. You can read more about this decision to screw pregnant women over on NPR and numerous blogs, such as Bizmology and Contentenique.
Reaching KV is more difficult; if you feel this is an "investor Relations" issue, you can email them at investorrelations@kvpharmaceutical.com. I'd be more inclined to see this as "an adverse event or side effect" in which case you can email them at drugsafety@kvph.com.
Show some outrage, if you have a few moments. Women who have gone into labor prematurely and lost children -- or are living with the consequences of a child born way, way too early -- have already paid enough, a few lifetimes over. They don't owe big pharm jack squat.
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